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Ask your Doctor -- Ask your Family
-- Ask your Clergy
The following
questions might work well as a starting point to further discussion.
Ask
Your Doctor. . .
- Will
you talk openly and candidly with me and my family about my illness:
(I want a doctor who will talk openly and candidly with me and my family
about me illness.)
- What
decisions will my family and I have to make, and what kinds of recommendations
will you give to help us make these decisions?
- Will
you go to bat for me with my insurance provider/or health plan, if you
believe that their managed care decisions are not in my best interest?
- What
will you do if I have a lot of pain or other uncomfortable symptoms?
- How
will you help us find excellent professionals with special training
when we need them? For example, medical, surgical and palliative care
specialists, clergy, social workers, etc.
- Will
you let me know if treatment stops working so that my family and I can
make appropriate decisions?
- Will
you support me in getting hospice care?
- What
will you do to make sure that you always listen to me and my family?
- If
I reach a point where I am too sick to speak for myself, how will you
make decisions about my care?
- Will
you still be available to me even when I'm very sick and close to the
end of my life?
Ask
Your Family. . .
- Will
you seek out information about my disease, advance directives, your
roles as caregivers, and what to expect as I get sicker and near the
end of life?
- If
I cannot communicate for myself, will you go to bat for me to make sure
that what I've asked for is done, even if you would make different choices
yourself?
- Will
you talk with me openly and lovingly about any unfinished business between
us and listen if I need to apologize or ask forgiveness for anything
in the past that has hurt you?
- Will
you talk with me about my coming death-my fears, my sorrow, my joys
and gratitude?
- Will
you find care for yourself so that you are not too drained by my illness?
- Will
you stay with me even if the going gets rough?
Ask
Your Clergy. . .
- Will
you understand and support my need for my spiritual self to be nourished
and to grow, even as my physical being deteriorates?
- If
I have negative feelings like frustration, sadness, despair, anger at
God or life, will you listen empathetically?
- Will
you help me if I have problems communicating with my family or friends?
- Will
you continue to visit me even if I get very sick or it is difficult
to talk with me?
- Will
you just sit and be with me, even if I don't want to talk?
Click
here to read the "Pain Care Bill of Rights"
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